Find out more below about a research study taking place at the University of Strathclyde.

The University of Strathclyde would like to invite you to take part in a dementia carers research study. The research study is investigating whether using an online education and self-care website called ‘iSupport’ is better at helping you take care of yourself and learning about dementia compared to reading a booklet designed for dementia carers. If you receive iSupport, you will be given instruction in how to access it, and a member of the team will contact you to provide assistance if you need help. iSupport has a number of different topics, and they can be accessed whenever you wish. Additionally, you can look at all the topics or just those that are of interest or relevant to your situation.

This work is important because most people living with dementia are cared for at home, supported by a family member or friend who often has limited knowledge of the condition. The role can be very stressful, and many carers experience more mental health problems and physical illness compared to people who are not dementia carers.

We are looking for participants who are aged 18 or over and have caring responsibilities for a family member or friend living with dementia and live in Britain. If you agree to take part, the researcher will ask you to complete some questionnaires in either a telephone or internet-based interview, whichever is your preference. The questions will ask about your role as a carer and the potential emotional impact of this role. Afterwards, you will be randomly allocated to either receive iSupport for a six-month period or receive an information booklet. This is so that we can compare how people feel when receiving either of these, and whether there are any benefits.

With your permission, we would also like to interview you again three-months and six-months after the start. Each of the interviews should take no more than one hour, and can be completed at a time that’s convenient to you. If you initially receive the booklet, we will provide access to iSupport following your six-month interview. At the end of six months, we may ask you to take part in an interview with another researcher who will ask more open questions about your experiences of using iSupport. Taking part is voluntary, and if you change your mind after agreeing to take part, you can withdraw at any time, and you do not have to say why. If you decide not to take part, or to withdraw, this will not make any difference to your health care, and it will not affect your rights in any way.

If you would like to learn more, please contact: isupportstudy@strath.ac.uk

 

 

Read more SDRC Latest

Treating dementia, what’s next and how do we get there?

On the 21st September 2021, World Alzheimer's Day, Alzheimer Scotland held their annual conference. It was a virtual event which was attended by people with dementia, carers, practitioners and other members of the public from all over Scotland.  In the afternoon...

The launch Scottish Brain Health and Dementia Research Strategy

Today (8 July 2021) sees the launch of the first Scottish Brain Health & Dementia Research Strategy. Prepared by Alzheimer Scotland, The Scottish Dementia Research Consortium and Brain Health Scotland, and endorsed by a broad range of national organisations, the...

New SDRC Executive Committee Member: Dr Jennifer Macfarlane

Given the change of circumstances of the SDRC Executive Committee in 2020/21, the committee have decided to co-opt Jennifer to the Executive to support our growing activities as we emerge from the pandemic. Find out more in Jennifer's biography below. Jen Macfarlane...

New SDRC Executive Committee Member: Stina Saunders

Our final announcement of new SDRC Executive Committee members is Stina Saunders. We are delighted to have Stina joining us and look forward to working with her and all the new members. Find out more about Stina in the blog below.   I am in the final year of my PhD at...

NHS Research Scotland Neuroprogressive and Dementia Research Network Strategy Launch

On 3rd December 2021, the NHS Research Scotland Neuroprogressive and Dementia Research Network (NRS NDN) launched a new strategy.  It sets out the Network's intention to involve, engage with, and support people with lived experience of neuroprogressive conditions or...

Do you have insights to share with other researchers? Write a blog for the SDRC!

We are always looking for SDRC members to feature on our website and write a guest blog for the SDRC. You may already be familiar with our blog series, where we welcome contributions from people with an experience of brain health or dementia research. From talking to...

Research Strategy Oversight Board Chair: Henry McLeish

The Scottish Dementia Research Consortium, Brain Health Scotland and Alzheimer Scotland are delighted to announce the appointment of Henry McLeish as the Chair of the Scottish Brain Health and Dementia Research Strategy Oversight Board.  In July 2021, the SDRC,...

The launch of the SDRC Annual Report 2019/20

The SDRC Annual Report 2019/20, launched on Monday 20th April, outlines what is new in dementia and brain health research in Scotland in the past 12 months. Once again, we are able to show the truly amazing quantity, quality and diversity of research happening...

Aducanumab: Approval of new Alzheimer’s disease drug explained

Aducanumab: Dr Terry Quinn explains approval of new Alzheimer's disease drug  SDRC Executive Committee member, Dr Terry Quinn, Terry takes us through all the important facts behind the recent announcement by the FDA in the US to approve aducanumab for the treatment of...

Ten years of the Alzheimer Scotland Dementia Research Centre: past, present, and future

Alzheimer Scotland Dementia Research Centre (ASDRC) is in partnership with the University of Edinburgh and provides a high quality environment for dementia research. On the 21st September 2021, the ASDRC celebrated its 10th Anniversary. To celebrate this, they...