What’s it like living with dementia and want to plan ahead? A film by Tharin Phenwan

Postgraduate Researcher Tharin Phenwan, from the School of Health Sciences, has filmed a short monologue as part of his research output for the study ‘Advance Care Planning initiation and transformation in home-dwelling people with dementia’.

The monologue is a composite narrative of people with dementia, revealing the challenges people with dementia face when creating their Advance Care Planning and in their daily lives. All parts of the monologue are verbatim quotes from people with dementia, which Tharin collected during an interview process for the study. Watch the full film below

Edited and written by Tharin Phenwan: t.phenwan@dundee.ac.uk Performed by Gordon Houston: gordonhoustonactor@gmail.com

More information about ACP is available at: https://ihub.scot/project-toolkits/an… https://www.nhsinform.scot/campaigns/…

Read more SDRC Blogs

Early Career Researchers: Sarah Hesse

The SDRC are delighted to introduce this blog series where everyday we highlight and celebrate the wonderful contribution PhD students and Early Career Researchers make to dementia and brain health research. Read the previous blogs here Our next blog is from Sarah...

Visiting the Alzheimer Scotland Brain Tissue Bank

The Alzheimer Scotland Brain Tissue Bank relaunch On 12 May, the Alzheimer Scotland Brain Tissue Bank was officially relaunched at the UK Dementia Research Institute, hosted in Professor Tara Spires-Jones’ lab at the University of Edinburgh. The event...

Research Participant Blog: Eileen Penman

The SDRC are pleased to be able to continue our Research Involvement blog series, featuring participants in research across Scotland. This blog series aims to share experiences of different perspectives of research as well as tips and lessons for researchers. Our...

Early Career Researchers: Luisa Parkinson

In the coming days, the SDRC are publishing a series of blogs featuring those that were in the SDRC Annual Report 2019/20. Read about Luisa Parkinson's research as a PhD student from the University of Edinburgh in this excerpt below. I am in my second year of my PhD...

Project Update: Kelly Kelly at Celebrating Scottish Research Conference 2024

Alzheimer Scotland Student Research Programme: update from 2023 recipient Kelly Kelly In 2023, Kelly Kelly began her MRes project as part of the Alzheimer Scotland Student Research Programme. Kelly’s studentship is hosted by the Alzheimer Scotland Centre for...

SDRC Conference: A view from the National Dementia Carers Action Network

The SDRC Annual Conference, held on 15th April 2019, brought together attendees from all over Scotland to hear about the latest developments in dementia research. In attendance at the conference as well were representatives from groups that work very closely with the...

Guest Blog: Enabling Research in Care Homes (ENRICH) Scotland

In this guest blog from Enabling research in Care Homes (ENRICH) Scotland, we find out more about the work of the organisation and how they are working with care homes to increase representation in research. This blog is taken from the SDRC Annual Report, which you...

Project Update: Alzheimer Scotland Student Research Programme 2024 recipients

Alzheimer Scotland Student Research Programme: update from 2024 recipients In 2024, Sarah-Jayne Hamilton and Katie Robertson began their Masters projects as part of the Alzheimer Scotland Student Research Programme. They began their projects in October 2024...

Early Career Researchers: Sarah Gregory

We are ending the third week of PhD student and Early Career Researcher blog series with Sarah Gregory, PhD student from the University of Edinburgh. Follow us on Twitter to keep up to date with the series. Hi, I’m Sarah and I’m a part time doctoral candidate with...

COVID Impact on ECRs: Edel Roddy

The SDRC are publishing a series of blogs featuring Early Career Researchers who are sharing how COVID has impacted their research and career prospects. The first blogs in this series also featured in our COVID Research Impact Report which we published in April. Read...